I never thought I would be one of those people. You know the ones, they get angry over and issue, and they push and push and push at it. Constantly bringing it up. Adding it to conversations even when the conversation didn't naturally go in that direction. I'm sure people wonder what the big deal is. Life works things out, they'll get to whatever it is. Now I guess I understand a little better. When it is your own child, or your own life they are leaving to "get to it," it is hard to just sit and wait. The only way anything will change with any rapidity is if someone goes and gives it a shove in the right direction. I now feel that way about pediatric medical advancements. I just got some of Cope's medical records. I have requested the rest and am just waiting for them to call. When I get them I'm going to set a timeline and fact sheet of 1) what the doctors and nurses told me, 2) what the records show they knew, but didn't tell me, 3) in hindsight what was most likely going on, and 4) if he would have been an adult instead of an infant what protocol and measures they would have taken and how that would have changed his outcome and prognosis. With that in mind I will show that medical treatment in the pediatric realm needs to catch up to the adult sector. I believe that if we were even a few years farther advanced in our pediatric medicine, that my son would not have brain damage or at least not have the amount he now lives with. I am grateful for the medicine we do have. I am grateful my son is alive, and I'm blessed to have such a special child. He has taught me so much, but I know this is a burden now and will continue to be one, and as a mother I would do anything if I could relieve that burden. I don't want other mother's to have to watch their children struggle with dailey activities that other kids find simple tasks, when it could have been avoided.
So, that is my "issue," well one of them anyway. Maybe sometime I'll let you know the rest but for right now, I'll post what I find as soon as I get his records so check back!